More People Suffer from NF than Muscular Dystrophy, Tay-Sachs and Huntington's Disease combined.

So why have you never heard of it?

NF, a progressive disorder, affects all ethnic groups and both sexes equally.  The effects of NF are unpredictable and the symptoms have varying degrees of severity.  The  fact is, it's one of the most common genetic disorders in the United States - striking one in every 3,000 births and 1.5 million people worldwide.

But there is hope.  And that's where we come in.

NF Inc. Minnesota is a nonprofit organization dedicated to individuals and families affected by NF.  How?  By providing information, support and appropriate referrals to anyone interested in NF.  We help to create awareness within our community and raise funds for research to attain better management, treatments and a cure.

NF is something you're born with.

There are two genetically distinct forms of NF:  NF-1 and NF-2.  Unfortunately, there is no known cure for either form of the disorder, even though the genes for both NF-1 and NF-2 have been identified.

NF is not contagious-it cannot be caught.  Some of the signs of NF do not appear until later in life, often around puberty.  About half the people with NF inherited the disorder from an affected parent.  The other fifty percent occurs in families where there is no history of the disorder.

Research is the key.

Currently the only treatment for NF is the surgical removal of tumors and continuous monitoring of the symptoms.  Researchers across the country are making impressive strides in clinical studies for NF and significant progress is being made to find a pharmaceutical treatment to control the growth of tumors.

We're here to help.

NF Inc. Minnesota is a source of comprehensive NF resources, referrals and information.  We're dedicated to all affected by NF and the professionals who provide services to them.  We create awareness, educate our community, support individuals, support families and fund scientific research aimed at the treatment and cure of NF.

Join Us.

Our chapter meetings provide knowledgeable speakers on relevant topics, children's programs, and opportunities to network and share information.  Newsletters, information packets and peer counseling are available to anyone, anytime.

The money raised through special events and membership not only fund research, but provide assistance with medical travel, camp scholarships and outreach.