NF1 Clinical Trials
Opportunities to
Participate in NF Research (PDF format)
Posted
November 2004
Clinical Trials Sponsored by the National Institutes of Health
- Dermal Neurofibroma (cutaneous/subcutaneous)
Study of Neurofibroma Growth in Adults with Neurofibromatosis Type 1
Mechanical Trauma in Neurofibroma Formation
- Plexiform Neurofibroma
AZD2171 in Treating Patients with NF1 and Plexiform Neurofibroma and/or Neurofibroma Near the Spine
Pirfenidone in Children and Young Adults with NF1 and Progressive Plexiform Neurofibromas
A Phase II Clinical Trial of Pirfenidone for the Treatment of Patients with NF1
Tipifarnib (R115777) to Treat Children with NF1 and Progressive Plexiform Neurofibromas
Combination Chemotherapy in Treating Patients with NF and Progressive Plexiform Neurofibromas
Novel Imaging Modalities for Plexiform Neurofibroma
Fludeoxyglucose
F 18 Positron Emission Tomography and Magnetic Resonance Perfusion Imaging in
Patients With
Neurofibromatosis 1 and Plexiform Neurofibroma
- Spinal Neurofibromas
A Phase II Clinical Trial of Perfenidone for the Treatment of Patients with NF1
- Visual Pathway Glioma
Temozolomide in Treating Patients with Progressive Low-Grade Glioma
Thalidomide and Temozolomide in Treating Young Patients with Relapsed or Progressive Brain
- Pheochromocytoma
131MIBG to Treat Malignant Pheochromocytoma
- Malignant Peripheral Nerve Sheath Tumors (MPNST)
Epirubicin (Ellence) for Advanced Soft Tissue Sarcoma
Erlotinib and Temozolomide in Treating Young Patients With Recurrent or Refractory Solid Tumors
Chemotherapy Before Surgery to Treat Malignant Peripheral Nerve Sheath Tumor
- Natural History (NF1)
Variation in Gene Expression in NF1
Quantitative Phenotyping and Genotype-Phenotype Correlations in NF1
Study of Disease Severity in Adults with Neurofibromatosis Type 1 (NF1)
Natural History and Biology of Skin Neurofibromas in Neurofibromatosis Type 1
- Other Tumors
Call for NF1 Tumor Donations (Research Call)
Neurofibroma Tissue Needed from NF1 Patients (Research Call)
- Bone Manifestations
Multicenter Study of Tibial Dysplasia in NF1 Patients (Research Call)
Bone Density Study in Houston (Research Call)
- Other Manifestations
Research Study Investigating the Variability of Families with NF1 (Research Call)
Families with NF1 and Colon Cancer Needed for a New Research Study (Research Call)
- Cognitive Disorders
Trial to Evaluate the Safety of Lovastatin in Adults with Neurofibromatosis Type I (NF1)
NF1-Attention: Study of Children With Neurofibromatosis Type 1 Treated by Methylphenidate
Phase I Study of Lovastatin for Neurocognitive Dysfunction in Children with NF1
Early Identification of Cognitive Deficits in Children with NF1
Functional MRI in Children with ADHD and NF1 (Research Call)
Attention Families of Children With Neurofibromatosis Type
1 (Ages 7 to 16)